Sarah and her mother have been caring for him for over 15 years. “The ideal is to go back to being mother and daughter, not carer. My mum is retired, aging and has her own health issues.” She has also taken on the main responsibility for her niece. “If he was well, he would be a dad to her.”

Sarah was diagnosed with breast cancer during the pandemic. With supporting her niece, caring for her brother and managing her own health conditions she shares the impact this is having on her career.

“I need a permanent job to have paid sick leave and so I can be my niece’s guarantor. I might eventually be another guarantor for my brother. I feel the pressure of needing to have a full-time job. It isn’t the job I want to do but I definitely can’t leave my job due to the flexible hours I get, so I can go to appointments with my brother, give him company when he is going through psychosis and more.”

"I also need flexibility due to my own health. I can’t work anymore than I do."

According to Carers UK, 5 million people in the UK are juggling caring responsibilities with work, that’s 1 in 7 in every workforce and this figure is set to increase. Employers are in a key position to make a positive difference in a carer’s life. Sarah shares her experience: 

“I’m grateful to have an employer that supports carers. During the pandemic I had to visit my brother everyday as Covid was contributing to how unwell he was getting. My employer has a contingency plan, meaning I could take paid leave to care for my brother. If they didn’t do that, I would be in a really awful situation, I would be in the position to need to use foodbanks. I shouldn’t have to rely on my employer being ‘generous’ to allow me to do this, it should be standard practice.”

"My costs are going up - fuel, food, everything. We don’t have money for the energy hike going up too. I have enough money to get through the summer, but I am worried about when winter comes. I lose around £300 every month to care for him."

"I don’t qualify for benefits, I fall through the cracks. There’s an assumption that because I work, ‘I’m ok’. I tried to work full-time, and it was a disaster. I was exhausted because of his care. If I work longer hours, he will be affected, and his health will deteriorate."

Sarah and her partner put a plan in place to save each month to help them navigate the winter and rising energy costs.

“We wanted to put aside money away each month, otherwise we knew we would not have the money when the time come. We haven’t been able to do this because everything has gone up – fuel especially. Carers like me have to drive to the person they care for. We’re already stretched now, there’s no wriggle room.”

“At the moment I can heat my house and have food on the table, if things go wrong, I won’t be able to accommodate both my niece and brother. As a unit, costs would soar and we would get less money. I can’t see how, as a family we can cope with the anticipated costs, and the rises. It shows how money has a direct impact on people’s health.”