Caring for someone with dementia
Caring for someone with dementia can initiate a journey like no other. We understand that carers need recognition, emotional support and practical help navigating the daily challenges of dementia care. Often, they end up feeling overwhelmed, isolated and unacknowledged.
We want to ensure these carers acknowledge their hidden struggles, see the huge value in their caring role and access the support they deserve.
Identifying as a carer
You are a carer, even if you prefer not to call yourself one.
Many people see themselves as “just the partner” or “just a son or daughter” doing what anyone would do, but if you are regularly helping someone with dementia manage daily life, you are a carer. Identifying as a carer is often the first step to accessing vital help, advice and services.
You are not alone, there are millions of individuals caring, just like you
Across the UK, there are over 540,000 carers of people with dementia (NHS England). You may feel isolated, but others are on the same journey. Online forums and support groups can help you connect with people who truly understand what you are facing- emotionally, practically and day-to-day.
Registering with your local caring community through The Carers' Centre connects you with other local carers, enabling you to benefit from the compassion and familiarity this offers.
Lynda is registered with The Carers' Centre and regularly access support through specialist support sessions and wellbeing cafés. She cares for her husband Brian, who has dementia and now resides in a care home.
Asking for help is not a weakness
Carers often experience burnout, and struggle with anxiety and health issues as they often put their wellbeing last. Waiting too long to ask for help can impact both you and your loved one. Reach out to your GP for health advice, or give our support line a call to discuss respite care, support services and advice around benefits. Our friendly Support team will listen and help you prioritise your emotional wellbeing before you reach crisis point.
Call our support line on 0800 0388 885, Monday to Friday 9am - 1pm.
Small changes can make a big difference
Using memory aids and dementia friendly routines to simplify communication in the home, which can ease daily life, for both you and the person you care for. Learning practical tips will help you and the person you care for to feel more confident and less overwhelmed.
Tips:
- Establish a daily routine with meals, medication, personal care and bedtime to reduce confusion and anxiety.
- Use a whiteboard or visual planner to show date and what is happening. This offers reassurance and structure.
- De-cluttering and keeping your environment clean and tidy helps reduce the feeling of being overwhelmed.
- Place signs around the home with both words and pictures to help with orientation.
- Use visual aids like large clocks.
- Create a memory book with names and pictures of family and friends. You can also note down significant events.
- Remove mirrors as this can cause distress and confusion.
- Install a nightlight to prevent falls or disorientation in the dark.
Know your rights and where to turn to for support
As a carer, you have a right to a carers’ assessment, financial support and respite services. You can request a carers' assessment by contacting BANES Adult Social Care on 01225 394 570 (select option 2).

You can also call our Support line and have a chat with one of our Support Officers, who will offer you emotional support and tailored advice. We will also help you check to make sure you are receiving the financial support you are entitled to as a carer.
Contact us on 0800 0388 885, Monday - Friday 9am-1pm.